This is for those who have asked how things have been with the gut and other issues…Mostly pretty good. However…
This has been one helluva week. Monday night my gut went haywire and kept waking me, making me slightly sleep deprived. To compensate, I emailed in sick to work, on Monday. That was 8am. What followed next was unexpected.
Noon I woke again, extraordinarily groggy, realizing I hadn’t yet fed or let the dogs out. So I did that, while barely staying awake. My hands and back were aching fiercely. I have no idea how I slept through it. I ate a meager lunch, and tried to stay awake. It was no use. I was out cold by 2pm.
I woke again, hands and back still aching, at 4pm. I let the dogs out, ate a bunch of left overs for supper, took the meds I usually take in the morning, and by 6pm was out cold again. 8pm I woke up and tried tinkering with my laptop. It was no use. I felt less clear headed than I do now.( I’ve not slept in nearly 36 hours, and it feels like it.)
This pattern repeated until Thursday night where I was actually up for a solid block of time after waking at 4pm. I noticed a lovely change. My back and fingers were feeling almost normal…
And then my gut started aching. It was that old familiar not-quite-crampiness that I’ve known since age 12. It said this wasn’t gas, constipation or anything else the average schmoe would recognize. It felt like I could be on the verge of another major flare up of Crohn’s. Fuck me running.
Since those can come with near fatal (no exaggeration) vomiting fits for me if manage to sleep through the gut pain I was stuck. I had already managed to sleep through worse joint pain vs the that moments gut pain! So I figured it was safest to stay awake until either things came to a head and launched me into the bathroom or abated. So I tinkered with my laptop, distracting myself from the gut pain.
By 5:30 AM things abated with my gut. However, the goddamn right hip was screaming in pain. But I had a therapists visit at 9am, incomplete homework for the DBT group, and a diary card to fill out. So taking Vicodin was out of the picture. I took some Tylenol to dull the pain a smidge, and forced my way through it all… All the while my hip kept getting “louder.”
At 10 AM I got home and found that my gut, hands, back and hip were all singing a cacophonous symphony of dull pains. Then I remembered something from my appointment with the Rheumatologist a week ago. We established that the hands and back were steroid responsive, and of course the gut is too. So I reluctantly took that god awful medication that fucks with my head (Prednisone) so that I could calm 3 of the 4 pains I was having.
I only took 5 mg. It helped a titch with the joints and eliminated the gut pain. But within 2 hours I was one mean cranky son of a motherless goat. Half the issues that spiraled me into DBT group therapy came flooding back. There was, however, one more positive that came from it. I didn’t feel the overwhelming need to sleep. :-)
To put it in perspective from Sunday night through until right now I’ve slept 54 hours. That’s an average of ~9hours a night since Sunday all days included, or ~11 hours a night for the nights I slept since Sunday, or ~16 for the just nights/days where I could do almost nothing but sleep. No matter how you slice it I’ve had more than an average nights sleep, despite the severe lack of it I’m laboring under at the moment.
So I guess I’ll be calling my Rheumatologist with this news. (Joints got frigging awful, low dose of prednisone helped a little.) The jury is still out on what could be causing the fatigue, finger and back aches. Perhaps it would be wise to start the one non-steroid that I’m a cadidate for … we’ll see.
Oh well. If all goes “well” I’ll be working a bit tomorrow to recoup some of the pay I’ll miss from having missed work earlier in the week. So I guess I should go to sleep now. Here’s to not sleeping past 8am!